References
Beauchamp, T. L., & Childress, J. F. (2001). Principles of biomedical ethics. Oxford University Press, USA.
Behan, J. M., Arora, R. S., Carnevale, F. A., Bakhshi, S., Bhattacharjee, B., & Tsimicalis, A. (2021). An Ethnographic Study of the Moral Experiences of Children with Cancer in New Delhi, India. Global Qualitative Nursing Research, 8, 2333393621995814. https://doi.org/10.1177/2333393621995814
Bluebond-Langner, M., & Korbin, J. E. (2007). Challenges and Opportunities in the Anthropology of Childhoods: An introduction to “Children, Childhoods, and Childhood Studies.” American Anthropologist, 109(2), 241–246.
Boztepe, H., Çınar, S., & Ay, A. (2017). School-age children’s perception of the hospital experience. Journal of Child Health Care, 21(2), 162–170. https://doi.org/10.1177/1367493517690454
Carnevale, F. A. (2004). Listening authentically to youthful voices: A conception of the moral agency of children. Toward a Moral Horizon: Nursing Ethics for Leadership and Practice. Toronto: Pearson Prentice Hall, 396–413.
Carnevale, F. A. (2020). A “Thick” conception of children’s voices: A hermeneutical framework for childhood research. International Journal of Qualitative Methods, 19, 1609406920933767.
Carnevale, F. A., Campbell, A., Collin-Vézina, D., & Macdonald, M. E. (2015). Interdisciplinary Studies of Childhood Ethics: Developing a New Field of Inquiry. Children & Society, 29(6), 511–523. https://doi.org/10.1111/chso.12063
Carnevale, F. A., Collin-Vézina, D., Macdonald, M. E., Ménard, J.-F., Talwar, V., & Van Praagh, S. (2021a). Childhood Ethics: An ontological advancement for childhood studies. Children & Society, 35(1), 110–124. WorldCat.org. https://doi.org/10.1111/chso.12406
Carnevale, F. A., Collin-Vézina, D., Macdonald, M. E., Ménard, J.-F., Talwar, V., & Van Praagh, S. (2021b). Childhood Ethics: An ontological advancement for childhood studies. Children & Society, 35(1), 110–124. https://doi.org/10.1111/chso.12406
Coughlin, K. W. (2018). Medical decision-making in paediatrics: Infancy to adolescence. Paediatrics & Child Health, 23(2), 138–146. https://doi.org/10.1093/pch/pxx127
Coyne, I. (2006). Consultation with children in hospital: Children, parents’ and nurses’ perspectives. Journal of Clinical Nursing, 15(1), 61–71. https://doi.org/10.1111/j.1365-2702.2005.01247.x
Coyne, I., & Harder, M. (2011). Children’s participation in decision-making: Balancing protection with shared decision-making using a situational perspective. Journal of Child Health Care, 15(4), 312–319. https://doi.org/10.1177/1367493511406570
Esser, F., Baader, M. S., Betz, T., & Hungerland, B. (2016). Reconceptualising Agency and Childhood: New perspectives in Childhood Studies. Routledge.
Etchells, E., Sharpe, G., Elliott, C., & Singer, P. A. (1996). Bioethics for clinicians: 3. Capacity. CMAJ: Canadian Medical Association Journal = Journal de l’Association Medicale Canadienne, 155(6), 657–661.
Fortier, M. A., Chorney, J. M., Rony, R. Y. Z., Perret-Karimi, D., Rinehart, J. B., Camilon, F. S., & Kain, Z. N. (2009). Children’s Desire for Perioperative Information. Anesthesia and Analgesia, 109(4), 1085–1090. https://doi.org/10.1213/ane.0b013e3181b1dd48
Fortier, M. A., Del Rosario, A. M., Martin, S. R., & Kain, Z. N. (2010). Perioperative anxiety in children. Pediatric Anesthesia, 20(4), 318–322. https://doi.org/10.1111/j.1460-9592.2010.03263.x
Fortier, M. A., Martin, S. R., MacLaren Chorney, J., Mayes, L. C., & Kain, Z. N. (2011). Preoperative anxiety in adolescents undergoing surgery: A pilot study. Pediatric Anesthesia, 21(9), 969–973. https://doi.org/10.1111/j.1460-9592.2011.03593.x
Gillon, R. (1994). Medical ethics: Four principles plus attention to scope. BMJ, 309(6948), 184. https://doi.org/10.1136/bmj.309.6948.184
Hester, D. M., & Schonfeld, T. (2012). Guidance for Healthcare Ethics Committees. Cambridge University Press.
Hudson, N., Spriggs, M., & Gillam, L. (2019). Telling the truth to young children: Ethical reasons for information disclosure in paediatrics. Journal of Paediatrics and Child Health, 55(1), 13–17. https://doi.org/10.1111/jpc.14209
Hunt, M. R., & Carnevale, F. A. (2011). Moral experience: A framework for bioethics research. Journal of Medical Ethics, 37(11), 658–662. https://doi.org/10.1136/jme.2010.039008
Kain, Z. N., Mayes, L. C., Caldwell-Andrews, A. A., Karas, D. E., & McClain, B. C. (2006). Preoperative Anxiety, Postoperative Pain, and Behavioral Recovery in Young Children Undergoing Surgery. Pediatrics, 118(2), 651–658. https://doi.org/10.1542/peds.2005-2920
Lee, N. (2001). Childhood and society: Growing up in an age of uncertainty. McGraw-Hill Education (UK). Lerwick, J. L. (2016). Minimizing pediatric healthcare-induced anxiety and trauma. World Journal of Clinical Pediatrics, 5(2), 143–150. https://doi.org/10.5409/wjcp.v5.i2.143
MacLaren, J. E., & Kain, Z. N. (2008). Prevalence and Predictors of Significant Sleep Disturbances in Children Undergoing Ambulatory Tonsillectomy and Adenoidectomy. Journal of Pediatric Psychology, 33(3), 248–257. https://doi.org/10.1093/jpepsy/jsm073
Mann, C. M., & Kennedy, C. (2020). Identifying the core attributes of pediatric communication techniques to be taught to anesthetic trainees. Pediatric Anesthesia, 30(5), 614–623. https://doi.org/10.1111/pan.13846
Massie, J., Skinner, A., McKenzie, I., & Gillam, L. (2021). A practical and ethical toolkit for last-minute refusal of anesthetic in children. Pediatric Anesthesia, 31(8), 834–838. https://doi.org/10.1111/pan.14201
McCormick, T. R., & Min, D. (2013). Principles of bioethics. Ethics in Medicine.
Montreuil, M., & Carnevale, F. A. (2016). A concept analysis of children’s agency within the health literature. Journal of Child Health Care, 20(4), 503–511. https://doi.org/10.1177/1367493515620914
Navin, M. C., & Wasserman, J. A. (2019). Capacity for Preferences and Pediatric Assent: Implications for Pediatric Practice. Hastings Center Report, 49(1), 43–51. https://doi.org/10.1002/hast.980
Nwomeh, B. C., & Caniano, D. A. (2011). Emerging ethical issues in pediatric surgery. Pediatric Surgery International, 27(6), 555–562. https://doi.org/10.1007/s00383-011-2907-3
Przybylo, H. J., Tarbell, S. E., & Stevenson, G. W. (2005). Mask fear in children presenting for anesthesia: Aversion, phobia, or both? Pediatric Anesthesia, 15(5), 366–370.
Siedlikowski, S., Van Praagh, S., Shevell, M., & Carnevale, F. A. (2022). Agency in everyday life: An ethnography of the moral experiences of children and youth. Children & Society, 36(4), 661–676. https://doi.org/10.1111/chso.12524
Thomas, J. (2005). Brute force or gentle persuasion? Pediatric Anesthesia, 15(5), 355–357. https://doi.org/10.1111/j.1460-9592.2005.01626.x
Unicef. (1989). Convention on the Rights of the Child.
Wang, Y. W., Carnevale, F. A., Chougui, K., & Tsimicalis, A. (2022). How Children’s participation ought to be practiced: A preliminary ethical framework to optimise the participation of children with osteogenesis imperfecta in health care. Journal of Clinical Nursing. https://doi.org/10.1111/jocn.16398
Wang, Y. W., Carnevale, F., Ezcurra, M., Bilodeau, C., Siedlikowski, S., & Tsimicalis, A. (2022). The Moral Experiences of Children with Osteogenesis Imperfecta. Submitted to Nursing Ethics.
Zwaanswijk, M., Tates, K., van Dulmen, S., Hoogerbrugge, P. M., Kamps, W. A., & Bensing, J. M. (2007). Young patients’, parents’, and survivors’ communication preferences in paediatric oncology: Results of online focus groups. BMC Pediatrics, 7(1), 35. https://doi.org/10.1186/1471-2431-7-35
Behan, J. M., Arora, R. S., Carnevale, F. A., Bakhshi, S., Bhattacharjee, B., & Tsimicalis, A. (2021). An Ethnographic Study of the Moral Experiences of Children with Cancer in New Delhi, India. Global Qualitative Nursing Research, 8, 2333393621995814. https://doi.org/10.1177/2333393621995814
Bluebond-Langner, M., & Korbin, J. E. (2007). Challenges and Opportunities in the Anthropology of Childhoods: An introduction to “Children, Childhoods, and Childhood Studies.” American Anthropologist, 109(2), 241–246.
Boztepe, H., Çınar, S., & Ay, A. (2017). School-age children’s perception of the hospital experience. Journal of Child Health Care, 21(2), 162–170. https://doi.org/10.1177/1367493517690454
Carnevale, F. A. (2004). Listening authentically to youthful voices: A conception of the moral agency of children. Toward a Moral Horizon: Nursing Ethics for Leadership and Practice. Toronto: Pearson Prentice Hall, 396–413.
Carnevale, F. A. (2020). A “Thick” conception of children’s voices: A hermeneutical framework for childhood research. International Journal of Qualitative Methods, 19, 1609406920933767.
Carnevale, F. A., Campbell, A., Collin-Vézina, D., & Macdonald, M. E. (2015). Interdisciplinary Studies of Childhood Ethics: Developing a New Field of Inquiry. Children & Society, 29(6), 511–523. https://doi.org/10.1111/chso.12063
Carnevale, F. A., Collin-Vézina, D., Macdonald, M. E., Ménard, J.-F., Talwar, V., & Van Praagh, S. (2021a). Childhood Ethics: An ontological advancement for childhood studies. Children & Society, 35(1), 110–124. WorldCat.org. https://doi.org/10.1111/chso.12406
Carnevale, F. A., Collin-Vézina, D., Macdonald, M. E., Ménard, J.-F., Talwar, V., & Van Praagh, S. (2021b). Childhood Ethics: An ontological advancement for childhood studies. Children & Society, 35(1), 110–124. https://doi.org/10.1111/chso.12406
Coughlin, K. W. (2018). Medical decision-making in paediatrics: Infancy to adolescence. Paediatrics & Child Health, 23(2), 138–146. https://doi.org/10.1093/pch/pxx127
Coyne, I. (2006). Consultation with children in hospital: Children, parents’ and nurses’ perspectives. Journal of Clinical Nursing, 15(1), 61–71. https://doi.org/10.1111/j.1365-2702.2005.01247.x
Coyne, I., & Harder, M. (2011). Children’s participation in decision-making: Balancing protection with shared decision-making using a situational perspective. Journal of Child Health Care, 15(4), 312–319. https://doi.org/10.1177/1367493511406570
Esser, F., Baader, M. S., Betz, T., & Hungerland, B. (2016). Reconceptualising Agency and Childhood: New perspectives in Childhood Studies. Routledge.
Etchells, E., Sharpe, G., Elliott, C., & Singer, P. A. (1996). Bioethics for clinicians: 3. Capacity. CMAJ: Canadian Medical Association Journal = Journal de l’Association Medicale Canadienne, 155(6), 657–661.
Fortier, M. A., Chorney, J. M., Rony, R. Y. Z., Perret-Karimi, D., Rinehart, J. B., Camilon, F. S., & Kain, Z. N. (2009). Children’s Desire for Perioperative Information. Anesthesia and Analgesia, 109(4), 1085–1090. https://doi.org/10.1213/ane.0b013e3181b1dd48
Fortier, M. A., Del Rosario, A. M., Martin, S. R., & Kain, Z. N. (2010). Perioperative anxiety in children. Pediatric Anesthesia, 20(4), 318–322. https://doi.org/10.1111/j.1460-9592.2010.03263.x
Fortier, M. A., Martin, S. R., MacLaren Chorney, J., Mayes, L. C., & Kain, Z. N. (2011). Preoperative anxiety in adolescents undergoing surgery: A pilot study. Pediatric Anesthesia, 21(9), 969–973. https://doi.org/10.1111/j.1460-9592.2011.03593.x
Gillon, R. (1994). Medical ethics: Four principles plus attention to scope. BMJ, 309(6948), 184. https://doi.org/10.1136/bmj.309.6948.184
Hester, D. M., & Schonfeld, T. (2012). Guidance for Healthcare Ethics Committees. Cambridge University Press.
Hudson, N., Spriggs, M., & Gillam, L. (2019). Telling the truth to young children: Ethical reasons for information disclosure in paediatrics. Journal of Paediatrics and Child Health, 55(1), 13–17. https://doi.org/10.1111/jpc.14209
Hunt, M. R., & Carnevale, F. A. (2011). Moral experience: A framework for bioethics research. Journal of Medical Ethics, 37(11), 658–662. https://doi.org/10.1136/jme.2010.039008
Kain, Z. N., Mayes, L. C., Caldwell-Andrews, A. A., Karas, D. E., & McClain, B. C. (2006). Preoperative Anxiety, Postoperative Pain, and Behavioral Recovery in Young Children Undergoing Surgery. Pediatrics, 118(2), 651–658. https://doi.org/10.1542/peds.2005-2920
Lee, N. (2001). Childhood and society: Growing up in an age of uncertainty. McGraw-Hill Education (UK). Lerwick, J. L. (2016). Minimizing pediatric healthcare-induced anxiety and trauma. World Journal of Clinical Pediatrics, 5(2), 143–150. https://doi.org/10.5409/wjcp.v5.i2.143
MacLaren, J. E., & Kain, Z. N. (2008). Prevalence and Predictors of Significant Sleep Disturbances in Children Undergoing Ambulatory Tonsillectomy and Adenoidectomy. Journal of Pediatric Psychology, 33(3), 248–257. https://doi.org/10.1093/jpepsy/jsm073
Mann, C. M., & Kennedy, C. (2020). Identifying the core attributes of pediatric communication techniques to be taught to anesthetic trainees. Pediatric Anesthesia, 30(5), 614–623. https://doi.org/10.1111/pan.13846
Massie, J., Skinner, A., McKenzie, I., & Gillam, L. (2021). A practical and ethical toolkit for last-minute refusal of anesthetic in children. Pediatric Anesthesia, 31(8), 834–838. https://doi.org/10.1111/pan.14201
McCormick, T. R., & Min, D. (2013). Principles of bioethics. Ethics in Medicine.
Montreuil, M., & Carnevale, F. A. (2016). A concept analysis of children’s agency within the health literature. Journal of Child Health Care, 20(4), 503–511. https://doi.org/10.1177/1367493515620914
Navin, M. C., & Wasserman, J. A. (2019). Capacity for Preferences and Pediatric Assent: Implications for Pediatric Practice. Hastings Center Report, 49(1), 43–51. https://doi.org/10.1002/hast.980
Nwomeh, B. C., & Caniano, D. A. (2011). Emerging ethical issues in pediatric surgery. Pediatric Surgery International, 27(6), 555–562. https://doi.org/10.1007/s00383-011-2907-3
Przybylo, H. J., Tarbell, S. E., & Stevenson, G. W. (2005). Mask fear in children presenting for anesthesia: Aversion, phobia, or both? Pediatric Anesthesia, 15(5), 366–370.
Siedlikowski, S., Van Praagh, S., Shevell, M., & Carnevale, F. A. (2022). Agency in everyday life: An ethnography of the moral experiences of children and youth. Children & Society, 36(4), 661–676. https://doi.org/10.1111/chso.12524
Thomas, J. (2005). Brute force or gentle persuasion? Pediatric Anesthesia, 15(5), 355–357. https://doi.org/10.1111/j.1460-9592.2005.01626.x
Unicef. (1989). Convention on the Rights of the Child.
Wang, Y. W., Carnevale, F. A., Chougui, K., & Tsimicalis, A. (2022). How Children’s participation ought to be practiced: A preliminary ethical framework to optimise the participation of children with osteogenesis imperfecta in health care. Journal of Clinical Nursing. https://doi.org/10.1111/jocn.16398
Wang, Y. W., Carnevale, F., Ezcurra, M., Bilodeau, C., Siedlikowski, S., & Tsimicalis, A. (2022). The Moral Experiences of Children with Osteogenesis Imperfecta. Submitted to Nursing Ethics.
Zwaanswijk, M., Tates, K., van Dulmen, S., Hoogerbrugge, P. M., Kamps, W. A., & Bensing, J. M. (2007). Young patients’, parents’, and survivors’ communication preferences in paediatric oncology: Results of online focus groups. BMC Pediatrics, 7(1), 35. https://doi.org/10.1186/1471-2431-7-35